Where to find help and support for myelodysplastic syndrome (MDS)
You and your loved ones will be supported through your treatment for myelodysplastic syndrome (MDS) by a group of specialists.
The clinical nurse specialist, or another member of your specialist team, will be able to give you information on local support services that you may find helpful.
There are also national cancer charities that offer support and information about MDS.
MDS UK Patient Support Group
Information and support for anyone affected by MDS, including online support meetings.
- Website: mdspatientsupport.org.uk
- Helpline: 020 7733 7558
- MDS UK Patient Support Group: support for MDS
Blood Cancer UK
Information and support for anyone affected by blood cancer.
- Website: www.bloodcancer.org.uk
- Helpline: 0808 208 0888
- Blood Cancer UK: support for you
- Blood Cancer UK: online community forum
Macmillan Cancer Support
Information and support for anyone affected by cancer.
- Website: www.macmillan.org.uk
- Helpline: 0808 808 00 00
- Macmillan Cancer Support: support line service
- Macmillan Cancer Support: online community
- Macmillan Cancer Support: find local support services
Cancer Research UK
Information and support for anyone affected by cancer.
- Website: www.cancerresearchuk.org
- Nurse helpline: 0808 800 4040
- Cancer Research UK: ask a nurse service
- Cancer Research UK: online cancer chat forum
- Cancer Research UK: find a clinical trial service
Marie Curie
Care and support for anyone affected by a terminal illness.
- Website: www.mariecurie.org.uk
- Helpline: 0800 090 2309
- Marie Curie: information and support
- Marie Curie: online community
- Marie Curie: patient services