Main tests for myelodysplastic syndrome (MDS)
If a GP refers you to a specialist (haematologist), you may need some tests to check for myelodysplastic syndrome (MDS).
Tests may include taking a small sample from your bone marrow (the tissue inside your bones) using a needle, to be checked for cancer. This is called a bone marrow biopsy.
If you have a bone marrow biopsy, you'll usually have a local anaesthetic to stop you feeling any pain. You may also be given medicine to help you relax (sedation).
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Getting your results
It can take a few weeks to get the results of your tests.
You may be asked to go to the hospital to get your results, or they may be sent to you in the post.
Try not to worry if your results are taking a long time to get to you. It does not definitely mean anything is wrong.
You can call the hospital or GP if you're worried. They should be able to give you an update on when you'll get your results.
When you get your test results, a specialist will explain what they mean and what will happen next. You may want to bring someone with you for support.
If you're told you have MDS
Hearing that you have MDS can feel overwhelming. You may be feeling anxious about what will happen next.
A group of specialists will look after you throughout the diagnosis, treatment and beyond.
The team includes a clinical nurse specialist (also called a specialist haematology nurse). They will be your main point of contact during and after treatment.
If you have any questions, the clinical nurse specialist will be able to help.
Macmillan Cancer Support has a free helpline that's open every day from 8am to 8pm.
They're there to listen if you have anything you want to talk about.
Call 0808 808 0000.
Next steps
If you've been told you have MDS, you may need more tests.
These may include genetic tests on your bone marrow samples.
These tests will help the specialists find out:
- the type of MDS you have
- your risk group, from very low risk to very high risk – this is based on how quickly your symptoms are expected to get worse, and the risk of MDS developing into another type of cancer called acute myeloid leukaemia (AML)
The team will talk to you about options and help you decide on the best treatment plan, based on which type of MDS you have, your risk group and your symptoms.