Address & contact details |
Information supplied by |
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The MedicAlert Foundation
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Tel: 01908 951045
Suite 1
Liscombe South
Liscombe Park
Soulbury
Buckinghamshire
LU7 0JL
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We are a registered charity providing a life-saving identification system for individuals with hidden medical conditions and allergies. This takes the form of body-worn bracelets or necklets (known as MedicAlert Emblems) bearing the MedicAlert symbol on the disc and supported by a 24 hour emergen...
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Individuals with hidden medical conditions and allergies, their carers, general public, and health care professionals
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Macintyre
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Tel: 01908 230100
602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA
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We provide learning, support and care for more than 1000 children, young people and adults with learning disabilities and/or autism across England and Wales.
Our range of provision includes registered care homes, supported living schemes, accredited training schemes and lifelong learning service...
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Children, young people and adults with learning disabilities and/or autism
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PSPA
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Tel: 01327 322410
Margaret Powell House
415A Midsummer Boulevard
Milton Keynes
Buckinghamshire
MK9 3BN
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PSPA is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Corticobasal Degeneration (CBD), and those who care for them.
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Carers, Professionals, Family of PSP/CBD patients.
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The Sleep Apnoea Trust
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PO Box 60
Chinnor
Oxfordshire
OX39 4XE
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The Sleep Apnoea Trust Association (SATA) is a national charity funded by patients and run by patients exists to improve the lives of sleep apnoea patients, their partners and their families. Its website is the best source of up to date sleep apnoea information for adults. The website is constan...
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Data not available
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Cardiomyopathy Association
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Tel: 01494 791224
Unit 10, Chiltern Court
Asheridge Road
Chesham
Buckinghamshire
HP5 2PX
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The charity provides information and support to families affected by the heart muscle disease. It holds information days around the country, has a network of people affected by the disease who provide one-to-one telephone support, has support groups around the UK and a website packed with inform...
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Data not available
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Me Association
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Tel: 0344 5765326
7 Apollo Office Court
Radclive Road
Gawcott
Buckinghamshire
MK18 4DF
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The ME Association wants the UK to be a better place for people with ME/CFS – somewhere where the physical nature of the illness is taken seriously and sufferers get the respect they deserve. We bring campaigning, information and support to the mix to make this happen and run ME Connect, the UK's...
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Hearing Dogs For Deaf People
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Tel: 01844 348100
The Grange (Head Office)
Wycombe Road
Saunderton
Princes Risborough
Buckinghamshire
HP27 9NS
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Nearly nine million of the UK population experience some degree of hearing loss. That's one person in every seven. Over 650,000 of these people could benefit from a hearing dog.
We train dogs to respond to specific sounds which hearing people often take for granted, such as the alarm clock, door...
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Severely and profoundly deaf people; their families; carers; health specialists, etc
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Rett UK
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Tel: 01582 798911
Rett UK
Victory House
Chobham Street
Luton
Bedfordshire
LU1 3BS
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Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.
We are the only charity in the UK providing support to people living with Rett syndrome.
Rett UK founded in 1985 round a kitchen table by Yvonne M...
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Telangiectasia Self Help Group
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Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
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The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
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Anyone affected by Telangiectasia
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