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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Ostomy Lifestyle
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Tel: 0800 731 4264
RG12 2XB
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Ostomy Lifestyle is the UK charity that provides support, advice and information for anyone affected by stoma surgery on their bowel or bladder.
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Anyone affected by stoma surgery (patients, carers, partners, friends, family, health care professionals)
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Organic Acidaemias Uk (Oauk)
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Tel: 01784 245989
5 Saxon Road
Ashford
Middlesex
TW15 1QL
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Organic Acidaemias UK (OAUK) provides telephone or e-mail support to parents of children with a variety of inherited metabolic disorders of protein. Many of these conditrions are rare, but carry the same concerns for the future well being of the children.
Examples of disorders are Methylmalonic...
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British Polio Fellowship Berkshire Branch
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Tel: 0800 043 1935
HA4 6SE
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The Berkshire Branch extends from Slough in the east of the County to Newbury in the west and also includes parts of Hampshire. The Basingstoke Circle is part of the Branch.
The Branch meets throughout the year in the local area, and organise social events, help with welfare, and benefits, also ...
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The British Polio Fellowship
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Tel: 0800 0431935
HA4 6SE
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The Fellowship provides information and support for people with polio and post polio syndrome, their families, carers and healthcare professionals in the UK. The Support Services Helpline based at Central Office offers information and support by telephone, post and email. Small welfare, heating a...
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People with polio and post polio syndrome, their families and carers, healthcare professionals, general public
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Backcare (Head office)
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Tel: 020 8977 5471
BackCare
Monkey Puzzle House
69-71 Windmill Road
Sunbury-on-Thames
Middlesex
TW16 7DT
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For over 50 years BackCare has been dedicated to educating the public throughout the UK and wider further afield in ways of preventing and alleviating back pain. The charity aims to significantly reduce the burden of back & neck pain by providing information, guidance and advice to all people and...
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Anyone affected by back pain.
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The High Wycombe And District Disabled Friendship Club
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Tel: 01494 814885
10 Hillcroft Road
Tylers Green
High Wycombe
Buckinghamshire
HP10 8EA
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The friendship club provides opportunity for disabled people to socialise. Entertainment and refreshments are also arranged. They meet at the Green Street Centre Desborough Road High Wycombe. The organisers may be able to provide transport for people not able to get to the venue. Meet second Sat...
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Data not available
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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Helping Handz
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Tel: 020 8583 3626
London Borough of Hounslow
Civic Centre
Lampton Road
Hounslow
Middlesex
TW3 4DN
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Helping HANDZ is the new name for the Hounslow Children with a Disability Network; it means Hounslow Additonal Needs and Disabilities Zone. You can think of Helping HANDZ as a support network helping parents and carers of disabled children to find information, news and support. It also helps to b...
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Parent/Carers of Children with Special Educational Needs
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