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Organic Acidaemias Uk (Oauk)
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Tel: 01784 245989
5 Saxon Road
Ashford
Middlesex
TW15 1QL
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Organic Acidaemias UK (OAUK) provides telephone or e-mail support to parents of children with a variety of inherited metabolic disorders of protein. Many of these conditrions are rare, but carry the same concerns for the future well being of the children.
Examples of disorders are Methylmalonic...
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Ostomy Lifestyle
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Tel: 0800 731 4264
RG12 2XB
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Ostomy Lifestyle is the UK charity that provides support, advice and information for anyone affected by stoma surgery on their bowel or bladder.
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Anyone affected by stoma surgery (patients, carers, partners, friends, family, health care professionals)
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Down'S Syndrome Association
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Tel: 0845 230 0372
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Langdon Down Centre
2a Langdon Park
Teddington
Middlesex
TW11 9PS
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We are the only organisation in this country focusing solely on all aspects of living successfully with Down's syndrome
Our organisation is divided into various teams, including:
Information - run the helpline; provide info about all aspects of living with Down's syndrome including specialist ad...
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Unique
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Tel: 01883 723356
The Rare Chromosome & Gene Disorder Support Group
The Stables
Station Road
Oxted
Surrey
RH8 9EE
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Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome or gene disorder and to raise public awareness.
Unique offers contact with families with an affected member who has the same rare chromosome or single gene disorder, or who has similar symptoms ...
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Parents, carers, grandparents of children affected by a rare chromosome or gene disorder. Those with such disorders themselves, and professionals who support and work with persons with such disorders.
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Nerve Tumours UK
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Tel: 0208 4391234
First Floor
44 Coombe Lane
London
Greater London
SW20 0LA
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Provide information, support and advice on Neurofibromatosis in the UK; facilitate and promote innovative research, and are an advocate for those with Neurofibromatosis.
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n/a
Data not available
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Infosound
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Tel: 03000 111 555
PO Box 20
Rottingdean
Brighton
East Sussex
BN2 7XX
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Infosound, which is a registered charity, brings free, accessible, impartial and relevant information to vision-impaired (blind and partially-sighted) people across the UK - information about those things that directly affect those who live with sight loss.
As the charity's name suggests that in...
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Blind and partially-sighted people, their families, carers and friends. There is no restriction.
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Phab (Head Office)
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Tel: 020 8667 9443
Summit House
50 Wandle Road
Croydon
Surrey
CR0 1DF
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Phab's aim is to promote and encourage people of all abilities to come together on equal terms, to achieve complete inclusion within the wider community.
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Data not available
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Action Against Medical Accidents (AVMA)
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Tel: 0845 123 23 52
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Freedman House
Christopher Wren Yard
117 High Street
Croydon
Surrey
CR0 1QG
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Action against Medical Accidents (AvMA) is the UK charity for patient safety and justice for people who have been affected by a medical accident. They provide free and confidential advice and support to people affected by medical accidents via their helpline and casework service, and can refer to...
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People who have been affected by a medical accident.
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African Caribbean Leukaemia Trust (Aclt)
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Tel: 020 3757 7700
2a Garnet Road
Thornton Heath
Surrey
CR7 8RD
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The African Caribbean Leukaemia Trust is a leading Leukaemia charity dedicated to raising awareness of the shortage of people on the UK Bone Marrow, Blood and Organ donor registers, by recruiting lifesavers especially from Black, Asian, mixed race and other minority ethnic communities.
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General Public (aimed at BME (Black and Minority Ethnic (Mixed-Race)
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British Disabled Fencing Association
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The British Disabled Fencing Association (BDFA) is the governing body for the paralympic sport of Wheelchair Fencing in Britain.
The BDFA has something for everyone and can provide a path to becoming a paralympic champion, a regular workout among friends or a social base with the odd bit of exe...
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People with a permanent disabilty
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