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The ITP Support Association
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Tel: 0844 777 0559
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The Platelet Mission
Kimbolton Road
Bolnhurst
Bedfordshire
MK44 2EL
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The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune thrombocytopenia (ITP), formerly known as Idiopathic Thrombocytopenic Purpura .
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Anyone with an interest in ITP
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Royal National Institute for Deaf People (RNID)
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Tel: 0808 808 0123, text 07360 268 988
Brightfield Business Hub
Bakewell Road
Orton Southgate
Peterborough
PE2 6XU
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We’re working for a world where hearing loss doesn’t limit or label people, where tinnitus is silenced and where people value and look after their hearing.
We want:
people to acknowledge their hearing loss and take action
more support for people with hearing loss
no one to be isolated through t...
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n/a
Data not available
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Shine (Spina Bifida Hydrocephalus Information Networking Equality)
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Tel: 01733 555988
PE1 2UQ
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SHINE (Spina bifida, Hydrocephalus, Information, Networking, Equality) is the leading national registered charity providing advice, support and information to individuals affected by spina bifida or hydrocephalus. This support extends to carers, family members and professionals in England, Wales ...
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Anyone with an interest in spina bifida and hydrocephalus
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Deafblind UK
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Tel: 0800 132 320
19 Rainbow Court
Paston Ridings
Peterborough
Cambridgeshire
PE4 7UP
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Deafblind UK is a national charity supporting people with sight and hearing loss to live the lives they want.
We help people to live with deafblindness by making connections, building their confidence and independence.
Living with combined sight and hearing loss can be frightening. Our team o...
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Carers, People living with a sight and hearing loss, general public.
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Alkaptonuria (Aku) Society
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Tel: 01223 322897
66 Devonshire Road
Cambridge
Cambridgeshire
CB1 2BL
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Alkaptonuria (AKU) Society is an information and support network for people diagnosed with the disease, Alkaptonuria (AKU).
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Anyone affected by Alkaptonuria, their families and professionals involved in their case.
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Wisbech PHAB
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Tel: 01945 700063
Wisbech Community Development Trust
Oasis Community Centre
St Micheals Ave
Wisbech
Cambridgeshire
PE13 3NR
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What is Phab's main aim? To promote and encourage people with and without physical disabilities to come together on equal terms.
In brief "to make more of life together".
We meet once a fortnight on Tuesdays from 7.30pm to 9.30pm.
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n/a
Data not available
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Fledglings
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Tel: 0845 458 1124
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Wenden Court
Station Approach
Wendens Ambo
Saffron Walden
Essex
CB11 4LB
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Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.
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Carers, Parents, Professionals, General Public
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PSPA
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Tel: 01327 322410
Margaret Powell House
415A Midsummer Boulevard
Milton Keynes
Buckinghamshire
MK9 3BN
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PSPA is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Corticobasal Degeneration (CBD), and those who care for them.
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Carers, Professionals, Family of PSP/CBD patients.
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Macintyre
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Tel: 01908 230100
602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA
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We provide learning, support and care for more than 1000 children, young people and adults with learning disabilities and/or autism across England and Wales.
Our range of provision includes registered care homes, supported living schemes, accredited training schemes and lifelong learning service...
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Children, young people and adults with learning disabilities and/or autism
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