Address & contact details |
Information supplied by |
Target group |
|
Telangiectasia Self Help Group
|
Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
|
The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
Continue reading overview
|
Anyone affected by Telangiectasia
|
|
Coeliac Uk
|
Tel: 0333 332 2033
3rd Floor
Apollo Centre
Desborough Road
High Wycombe
Buckinghamshire
HP11 2QW
|
For over 50 years Coeliac UK been helping people with coeliac disease and other gluten related conditions live happier, healthier lives. They do this by striving for better gluten free food in more places, providing independent, trustworthy advice and support to their community, and funding cruci...
Continue reading overview
|
Those diagnosed with coeliac disease, seeking a diagnosis, supporting a friend or relative or those trying to find out more about the gluten free diet, coeliac disease or dermatitis herpetiformis.
|
|
British Polio Fellowship Berkshire Branch
|
Tel: 0800 043 1935
HA4 6SE
|
The Berkshire Branch extends from Slough in the east of the County to Newbury in the west and also includes parts of Hampshire. The Basingstoke Circle is part of the Branch.
The Branch meets throughout the year in the local area, and organise social events, help with welfare, and benefits, also ...
Continue reading overview
|
n/a
Data not available
|
|
The British Polio Fellowship
|
Tel: 0800 0431935
HA4 6SE
|
The Fellowship provides information and support for people with polio and post polio syndrome, their families, carers and healthcare professionals in the UK. The Support Services Helpline based at Central Office offers information and support by telephone, post and email. Small welfare, heating a...
Continue reading overview
|
People with polio and post polio syndrome, their families and carers, healthcare professionals, general public
|
|
National Society For Phenyketonuria
|
Tel: 020 8364 3010
PO Box 26642
London
Greater London
N14 4ZF
|
The National Society for Phenyketonuria (NSPKU) exists to help and support people with Phenylketonuria, their families and carers.
The NSPKU actively promotes the care and treatment of Phenylketonuria's and works closely with medical professionals in the UK. It organises conferences throughout ...
Continue reading overview
|
|
|
Camp Simcha
|
Tel: 020 8202 9297
NW4 2TH
|
Camp Simcha exists to make a difference to seriously ill children throughout the UK. We provide a range of practical, therapeutic and emotional support services for the whole family. For children with over 50 different chronic, life-threatening or life-limiting medical conditions including geneti...
Continue reading overview
|
Children suffering from Cancer or other life threatening illnesses and their families
|
|
Xeroderma Pigmentosum Support Group
|
Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
|
Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
|
Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
|
|
Culture Dementia UK
|
Tel: 0800 014 8682
The Grange
Neasden Lane
Neasden
London
Greater London
NW10 1QB
|
Culture Dementia UK was founded in February 1998. Culture Dementia UK was previously known as Friends of African/Caribbean Carers and Sufferers of Dementia (FACCSD)
We became a National charity in the same year. We were set up to support carers and sufferers of dementia among the African...
Continue reading overview
|
Carers and sufferers of dementia among the African/Caribbean community.
|
|
Ambitious About Autism
|
Tel: 020 8881 5444
The Pears National Centre for Autism Education
Woodside Avenue
London
Greater London
N10 3JA
|
Ambitious about Autism is the national charity for children and young people with autism. The charity provides services, raises awareness and understanding, and campaigns to make the ordinary possible for children and young people with autism. We exist to enable children and young people with aut...
Continue reading overview
|
Children and young people with autism
|
|
Pseudoxanthoma Elasticum (Pxe) Support - Pixie
|
Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
|
The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
|
Carers, medical profession, general public etc
|