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Child Brain Injury Trust Head Office
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Tel: 0845 601 4939
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Unit 1, The Great Barn
Baynards Green Farm
Baynards Green
Bicester
Oxfordshire
OX27 7SG
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A national charity providing information, support and training to anyone affected by childhood acquired brain injury.
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Anyone affected by childhood acquired brain injury (families, carers, professionals etc)
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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Society For Mucopolysaccharide Diseases (Mps Society)
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Tel: 0345 389 9901
MPS House
Repton Place
White Lion Road
Amersham
Buckinghamshire
HP7 9LP
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The Society for Mucopolysaccharide Diseases (MPS Society) is the only UK charity supporting individuals and families affected by MPS and related diseases.
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Anyone affected by MPS and related diseases.
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Macintyre
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Tel: 01908 230100
602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA
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We provide learning, support and care for more than 1000 children, young people and adults with learning disabilities and/or autism across England and Wales.
Our range of provision includes registered care homes, supported living schemes, accredited training schemes and lifelong learning service...
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Children, young people and adults with learning disabilities and/or autism
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PSPA
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Tel: 01327 322410
Margaret Powell House
415A Midsummer Boulevard
Milton Keynes
Buckinghamshire
MK9 3BN
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PSPA is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Corticobasal Degeneration (CBD), and those who care for them.
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Carers, Professionals, Family of PSP/CBD patients.
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Heart Uk
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Tel: 0345 450 5988
7 North Road
Maidenhead
Berkshire
SL6 1PE
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At HEART UK we're passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease. We provide information, advice and support, a telephone helpline, website and membership scheme.
We're also committed to raising awareness about the risks of high cholesterol, l...
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Rett UK
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Tel: 01582 798911
Rett UK
Victory House
Chobham Street
Luton
Bedfordshire
LU1 3BS
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Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.
We are the only charity in the UK providing support to people living with Rett syndrome.
Rett UK founded in 1985 round a kitchen table by Yvonne M...
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GEMS
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Tel: 01753 373 244 or 0800 999 1342
SL1 4QT
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Autism & ADHD signposting and workshops for East Berkshire residents and over 18's in Bracknell.
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Parents and carers of children with autism and adhd
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