Address & contact details |
Information supplied by |
Target group |
Smith-Magenis Syndrome (SMS) Foundation UK
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Tel: 0300 101 0034
18 Suthmere Drive
Marlborough
Wiltshire
SN8 3TG
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Our Vision is that every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.
The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working wi...
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Data not available
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Colostomy UK
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Tel: 0800 328 4257
100 Berkshire Place
Winnersh
Wokingham
Berkshire
RG41 5RD
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The primary role of the Colostomy UK is to represent the interests of people with a colostomy. We are experts in living with a colostomy and that experience is available to all colostomates, via personal contact with our volunteers.
We are here to provide support, reassurance and practical infor...
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People with a colostomy, their families and carers
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It Can Help (Itch) National
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Tel: 0800 269 545
Members Groups
1st Floor, Block D, North Star House
North Star Avenue
Swindon
Wiltshire
SN2 1FA
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IT Can Help was founded in 1994 as a programme of BCS (British Computer Society), The Chartered Institute for IT. IT Can Help offers free computer support to disabled people. Our volunteers make over 1000 visits each year to assist disabled people.
If you have a disability and need IT help, we w...
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Kidney Care UK
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Tel: 01420 541424
3 The Windmills
St Mary's Close
Turk Street
Alton
Hampshire
GU34 1EF
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Kidney Care UK is the UK’s leading kidney patient support charity, providing practical, financial and emotional support for kidney patients and their families and campaigning to improve care services across the UK
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Patients and families at any stage of life, when dialysis or transplantation is underway, and kidney disease is having a serious impact upon daily life.
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British Liver Trust
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Tel: Office - 01425 481320
Nurse Led Helpline - 0800 6527330
Venta Court
20 Jewry Street
Winchester
Hampshire
SO23 8FE
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Dedicated resources for people with liver disease offering website, helpline and publications. Our aim is to reach out to as many people as possible by providing information and support, and lobbying for the services people with liver disease need. We have strong contacts with professionals in th...
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General public and professionals.
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The Makaton Charity
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Tel: 01276 606760
Manor House
46 London Road
Blackwater
Camberley
Surrey
GU17 0AA
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Makaton is a language programme which uses signs, symbols and speech to enable people with learning and communication difficulties to communicate.
The Makaton Charity:
- provides training to parents, carers, and professionals
- develops and produces printed and electronic resources
- works with...
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Parents, carers, professionals and users
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Counselling Directory
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Tel: 0333 325 2500
GU15 3YL
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We aim to be the leading service for counselling advice and information, connecting those in distress with the largest support network in the UK. Since our service was launched in 2005 we have grown rapidly in both size and popularity. We continue to build Counselling Directory around feedback fr...
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TWINS TRUST
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Tel: 01252 332 344
The Manor House
Manor Park, Church Hill
Aldershot
Surrey
GU12 4JU
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The Twins trust is a charity set up by parents of twins, triplets and higher multiples and interested professionals in 1978. It is the only UK wide organisation that directly helps parents and professionals to meet the unique challenges that multiple birth families face.
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Data not available
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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