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Alkaptonuria (Aku) Society
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Tel: 01223 322897
66 Devonshire Road
Cambridge
Cambridgeshire
CB1 2BL
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Alkaptonuria (AKU) Society is an information and support network for people diagnosed with the disease, Alkaptonuria (AKU).
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Anyone affected by Alkaptonuria, their families and professionals involved in their case.
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The High Wycombe And District Disabled Friendship Club
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Tel: 01494 814885
10 Hillcroft Road
Tylers Green
High Wycombe
Buckinghamshire
HP10 8EA
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The friendship club provides opportunity for disabled people to socialise. Entertainment and refreshments are also arranged. They meet at the Green Street Centre Desborough Road High Wycombe. The organisers may be able to provide transport for people not able to get to the venue. Meet second Sat...
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Data not available
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Child Bereavement Charity
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Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
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The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
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Bereaved families/professionals who care for them
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Supportline Romford
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Tel: 01708 765222
PO Box 2860
Romford
Essex
RM7 1JA
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We offer confidential emotional support to children, young adults and adults by telephone, email and post. We work with callers to develop healthy, positive coping strategies, an inner feeling of strength and increased self esteem to encourage healing, recovery and moving forward with life. We al...
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General public, children, young people and adults.
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Lupus Uk
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Tel: 01708 731251
St James House
Eastern Road
Romford
Essex
RM1 3NH
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LUPUS UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis.
We presently have over 6000 Members and a number of Regional Groups around the UK who arrange medical talks, publish local newsletters, set up loca...
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Coeliac Uk
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Tel: 0333 332 2033
3rd Floor
Apollo Centre
Desborough Road
High Wycombe
Buckinghamshire
HP11 2QW
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For over 50 years Coeliac UK been helping people with coeliac disease and other gluten related conditions live happier, healthier lives. They do this by striving for better gluten free food in more places, providing independent, trustworthy advice and support to their community, and funding cruci...
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Those diagnosed with coeliac disease, seeking a diagnosis, supporting a friend or relative or those trying to find out more about the gluten free diet, coeliac disease or dermatitis herpetiformis.
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Telangiectasia Self Help Group
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Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
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The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
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Anyone affected by Telangiectasia
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Xeroderma Pigmentosum Support Group
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Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
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Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
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Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
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Pseudoxanthoma Elasticum (Pxe) Support - Pixie
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Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
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The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
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Carers, medical profession, general public etc
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