Address & contact details |
Information supplied by |
Target group |
|
Telangiectasia Self Help Group
|
Tel: 01494 528047
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
|
The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or t...
Continue reading overview
|
Anyone affected by Telangiectasia
|
|
Down'S Syndrome Association
|
Tel: 0845 230 0372
[Personalisation:Informative:PremiumPhone-RateUnknownMsg]
Langdon Down Centre
2a Langdon Park
Teddington
Middlesex
TW11 9PS
|
We are the only organisation in this country focusing solely on all aspects of living successfully with Down's syndrome
Our organisation is divided into various teams, including:
Information - run the helpline; provide info about all aspects of living with Down's syndrome including specialist ad...
Continue reading overview
|
n/a
Data not available
|
|
Association For Postnatal Illness
|
Tel: 020 7386 0868
145 Dawes Road
Fulham
London
Greater London
SW6 7EB
|
The Association provides a telephone helpline, information leaflets for sufferers and healthcare professionals as well as a network of volunteers (telephone and postal), who have themselves experienced postnatal illness.
|
Those affected by postnatal illness
|
|
SOS! Special Educational Needs
|
Tel: 0208 538 3731
KT8 9BE
|
We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN). We concentrate on helping people to find their way through the legal and procedural maze which is so daunting to so many who try...
Continue reading overview
|
n/a
Data not available
|
|
Cystic Fibrosis Holiday Fund
|
Tel: 020 7616 1300
1 Bell Street
London
Greater London
NW1 5BY
|
We provide financial assistance for UK children and young people with Cystic Fibrosis up to the age of 25, so they can take an invaluable break.
|
Anyone, aged 25 or under, who suffers from Cystic Fibrosis can apply for a grant on the understanding that you will follow any specialist medical advice that your consultant prescribes.
|
|
Ambitious About Autism
|
Tel: 020 8881 5444
The Pears National Centre for Autism Education
Woodside Avenue
London
Greater London
N10 3JA
|
Ambitious about Autism is the national charity for children and young people with autism. The charity provides services, raises awareness and understanding, and campaigns to make the ordinary possible for children and young people with autism. We exist to enable children and young people with aut...
Continue reading overview
|
Children and young people with autism
|
|
Advocacy for Neuroacanthocytosis Patients
|
Tel: 020 7460 8874
39 Coleherne Court
London
Greater London
SW5 0DN
|
Advocacy for Neuroacanthocytosis Patients supports families affected by ChAc, also known as VPS13 Disease and McLeod Disease, also known as XK Disease.
|
Those diagnosed with these diseases, their families and carers.
|
|
Ataxia UK
|
Tel: 0207 582 1444
12 Broadbent Close
London
Greater London
N6 5JW
|
Ataxia UK funds research into finding treatments and a cure for ataxia, and they support people through a range of services. Support is also available for their families and carers.
|
Individuals affected by ataxia, their friends, family or carers.
|
|
Gingerbread
|
Tel: 0808 802 0925
255 Kentish Town
London
Greater London
NW5 2LX
|
Gingerbread provides expert advice, practical support and campaigns for single parents.
|
|
|
Endometriosis Uk
|
Tel: 020 7222 2781
Suites 1 & 2
46 Manchester Street
London
Greater London
W1U 7LS
|
Endometriosis UK (formerly the National Endometriosis Society) started in 1981 as a self-help group for women with endometriosis. Now, we are a charity committed to providing much-needed support and information for anyone affected by the condition. We work to increase understanding of this common...
Continue reading overview
|
General public and carers
|