Address & contact details |
Information supplied by |
Target group |
|
Xeroderma Pigmentosum Support Group
|
Tel: 01494 890981
Instron House
Coronation Road
High Wycombe
Buckinghamshire
HP12 3SY
|
Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with Xeroderma Pigmentosum. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
|
Everyone who has contact with someone with Xeroderma Pigmentosun and other light and UV sensitive conditions
|
|
Child Bereavement Charity
|
Tel: 0800 02 88 40
Unit B Knaves Beech Way
Knaves Beech Industrial Estate
Loudwater
High Wycombe
Buckinghamshire
HP10 9QY
|
The Child Bereavement Charity is the UK's leading charity that supports families and educates professionals both when a child dies and when a child is bereaved. Every year the charity trains around 5000 professionals across health care, social care, education, the emergency services and the volun...
Continue reading overview
|
Bereaved families/professionals who care for them
|
|
Macintyre
|
Tel: 01908 230100
602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA
|
We provide learning, support and care for more than 1000 children, young people and adults with learning disabilities and/or autism across England and Wales.
Our range of provision includes registered care homes, supported living schemes, accredited training schemes and lifelong learning service...
Continue reading overview
|
Children, young people and adults with learning disabilities and/or autism
|
|
PSPA
|
Tel: 01327 322410
Margaret Powell House
415A Midsummer Boulevard
Milton Keynes
Buckinghamshire
MK9 3BN
|
PSPA is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Corticobasal Degeneration (CBD), and those who care for them.
|
Carers, Professionals, Family of PSP/CBD patients.
|
|
Psoriasis And Psoriatic Arthritis Alliance (Papaa)
|
Tel: 01923 672837
Unit 3 Horseshoe Business Park
Lye Lane
Bricket Wood
St Albans
Hertfordshire
AL2 3TA
|
Principal resource of information and help for people with psoriasis and psoriatic arthritis in the UK.
|
Anyone affected by psoriasis or psoriatic arthritis who need advice and information.
|
|
Action For Children Head Office
|
Tel: 0300 123 2112
Action for Children
3 The Boulevard
Ascot Road
Watford
Hertfordshire
WD18 8AG
|
Action for Children supports and speaks out for the most vulnerable and neglected children and young people in the UK.
|
n/a
Data not available
|
|
Pseudoxanthoma Elasticum (Pxe) Support - Pixie
|
Tel: 01628 476687
15 Mead Close
Marlow
Buckinghamshire
SL7 1HR
|
The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run by one part time employee and by unpaid volunteers.
|
Carers, medical profession, general public etc
|
|
Me Association
|
Tel: 0344 5765326
7 Apollo Office Court
Radclive Road
Gawcott
Buckinghamshire
MK18 4DF
|
The ME Association wants the UK to be a better place for people with ME/CFS – somewhere where the physical nature of the illness is taken seriously and sufferers get the respect they deserve. We bring campaigning, information and support to the mix to make this happen and run ME Connect, the UK's...
Continue reading overview
|
|
|
Crohn’s & Colitis UK
|
Tel: 0300 222 5700
1 Bishops Square
Hatfield Business Park
Hatfield
Hertfordshire
AL10 9NE
|
Crohn's & Colitis UK is the national charity to help inform anyone affected by Crohn’s and Colitis including friends, family, medical professionals and even employers.
The services provided include helplines, a website, information booklets and a network of local groups. The charity raises aware...
Continue reading overview
|
The service is available to anyone who might need it.
|
|
Dyspraxia Foundation
|
Tel: 01462 454986
8 West Alley
Hitchin
Hertfordshire
SG5 1EG
|
The objects of the Dyspraxia Foundation are:
• To support individuals and families affected by dyspraxia
• To promote better diagnostic and treatment facilities for those who have dyspraxia
• To help professionals in health and education to assist those with dyspraxia
• To promote awareness ...
Continue reading overview
|
Parents / carers and sufferers of Dyspraxia. Professionals in health and education.
|