Address & contact details |
Information supplied by |
Target group |
Alkaptonuria (Aku) Society
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Tel: 01223 322897
66 Devonshire Road
Cambridge
Cambridgeshire
CB1 2BL
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Alkaptonuria (AKU) Society is an information and support network for people diagnosed with the disease, Alkaptonuria (AKU).
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Anyone affected by Alkaptonuria, their families and professionals involved in their case.
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The ITP Support Association
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Tel: 0844 777 0559
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The Platelet Mission
Kimbolton Road
Bolnhurst
Bedfordshire
MK44 2EL
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The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune thrombocytopenia (ITP), formerly known as Idiopathic Thrombocytopenic Purpura .
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Anyone with an interest in ITP
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Multiple Sclerosis Trust
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Tel: 01462 476700
Spirella Building
Bridge Road
Letchworth
Hertfordshire
SG6 4ET
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The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services. Our vision is to enable people with MS to live their lives to th...
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Anyone affected by MS, either personally or professionally
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Cyclical Vomiting Syndrome Association Uk
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Tel: 0151 342 1660
SG6 4LD
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Cyclical Vomiting Syndrome Association UK are a registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.
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Anyone affected by Cyclical Vomiting Syndrome
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Fledglings
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Tel: 0845 458 1124
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Wenden Court
Station Approach
Wendens Ambo
Saffron Walden
Essex
CB11 4LB
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Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.
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Carers, Parents, Professionals, General Public
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Dyspraxia Foundation
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Tel: 01462 454986
8 West Alley
Hitchin
Hertfordshire
SG5 1EG
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The objects of the Dyspraxia Foundation are:
• To support individuals and families affected by dyspraxia
• To promote better diagnostic and treatment facilities for those who have dyspraxia
• To help professionals in health and education to assist those with dyspraxia
• To promote awareness ...
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Parents / carers and sufferers of Dyspraxia. Professionals in health and education.
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Royal National Institute for Deaf People (RNID)
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Tel: 0808 808 0123, text 07360 268 988
Brightfield Business Hub
Bakewell Road
Orton Southgate
Peterborough
PE2 6XU
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We’re working for a world where hearing loss doesn’t limit or label people, where tinnitus is silenced and where people value and look after their hearing.
We want:
people to acknowledge their hearing loss and take action
more support for people with hearing loss
no one to be isolated through t...
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Data not available
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Rett UK
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Tel: 01582 798911
Rett UK
Victory House
Chobham Street
Luton
Bedfordshire
LU1 3BS
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Rett UK, a national charity with over 35 years’ experience of providing services for parents/families/carers of and individuals with Rett syndrome.
We are the only charity in the UK providing support to people living with Rett syndrome.
Rett UK founded in 1985 round a kitchen table by Yvonne M...
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Fragile X Society Essex
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Tel: 01371 875100
The Chestnuts
4 Stortford Road
Great Dunmow
Essex
CM6 1DA
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The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome.
The Society's Aims are to:
- provide support and information to fragile X families from those who share and understand their concerns and needs
- educate and inform the public an...
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Those who care for or have relatives affected by Fragile X Syndrome and professionals who work with them
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