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The ITP Support Association
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Tel: 0844 777 0559
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The Platelet Mission
Kimbolton Road
Bolnhurst
Bedfordshire
MK44 2EL
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The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune thrombocytopenia (ITP), formerly known as Idiopathic Thrombocytopenic Purpura .
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Anyone with an interest in ITP
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Royal National Institute for Deaf People (RNID)
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Tel: 0808 808 0123, text 07360 268 988
Brightfield Business Hub
Bakewell Road
Orton Southgate
Peterborough
PE2 6XU
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We’re working for a world where hearing loss doesn’t limit or label people, where tinnitus is silenced and where people value and look after their hearing.
We want:
people to acknowledge their hearing loss and take action
more support for people with hearing loss
no one to be isolated through t...
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n/a
Data not available
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Shine (Spina Bifida Hydrocephalus Information Networking Equality)
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Tel: 01733 555988
PE1 2UQ
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SHINE (Spina bifida, Hydrocephalus, Information, Networking, Equality) is the leading national registered charity providing advice, support and information to individuals affected by spina bifida or hydrocephalus. This support extends to carers, family members and professionals in England, Wales ...
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Anyone with an interest in spina bifida and hydrocephalus
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Motor Neurone Disease Association MND Connect
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Tel: 0808 802 6262
Francis Crick House
6 Summerhouse Road
Moulton Park
Northampton
Northamptonshire
NN3 6BJ
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The Motor Neurone Disease Association's vision is a world free of motor neurone disease (MND). The Association's mission is to fund and promote research to bring about an end to this devastating disease. Until then, the Association will do all that it can to enable everyone with MND to receive th...
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n/a
Data not available
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Insulin Dependent Diabetes Trust
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Tel: 01604 622837
210 Abington Avenue
Northampton
Northamptonshire
NN1 4PR
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The Insulin Dependent Diabetes Trust (IDDT) offers FREE support and information to people with diabetes, their families and health professionals on the issues that are important to them. Our Helpline offers a friendly understanding ear when the going gets tough.
Diabetes can cause serious long-...
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People with diabetes, parents, carers, teachers, health professionals and the general public
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Deafblind UK
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Tel: 0800 132 320
19 Rainbow Court
Paston Ridings
Peterborough
Cambridgeshire
PE4 7UP
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Deafblind UK is a national charity supporting people with sight and hearing loss to live the lives they want.
We help people to live with deafblindness by making connections, building their confidence and independence.
Living with combined sight and hearing loss can be frightening. Our team o...
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Carers, People living with a sight and hearing loss, general public.
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PCD Support UK
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PCD Support UK is a registered charity run entirely by volunteers who: provide support to patients with Primary Ciliary Dyskinesia (PCD) and their families, bring PCD to the attention of the medical profession and the public, provide an up to date information service and raise money to promote re...
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Anyone with an interest in PCD
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Cyclical Vomiting Syndrome Association Uk
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Tel: 0151 342 1660
SG6 4LD
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Cyclical Vomiting Syndrome Association UK are a registered charity providing information and supporting sufferers and their families or those affected by Cyclical Vomiting Syndrome.
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Anyone affected by Cyclical Vomiting Syndrome
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Multiple Sclerosis Trust
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Tel: 01462 476700
Spirella Building
Bridge Road
Letchworth
Hertfordshire
SG6 4ET
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The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services. Our vision is to enable people with MS to live their lives to th...
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Anyone affected by MS, either personally or professionally
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Alkaptonuria (Aku) Society
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Tel: 01223 322897
66 Devonshire Road
Cambridge
Cambridgeshire
CB1 2BL
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Alkaptonuria (AKU) Society is an information and support network for people diagnosed with the disease, Alkaptonuria (AKU).
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Anyone affected by Alkaptonuria, their families and professionals involved in their case.
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