Carer centres and services Addison's Disease Self Help Group
Contact us
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Address
Starling House
1600 Bristol Parkway North
Bristol
Avon
BS34 8YU
About
The Addison’s Disease Self-Help Group (ADSHG) is the UK & Ireland charity working to improve the lives of people with Addison’s Disease, adrenal insufficiency and all who support them.
Addison’s is a rare disease affecting adrenal gland function and can be life threatening. It affects approximately 1 in 10,000 people, meaning an estimated 300 - 350 new cases are diagnosed each year across the UK, this makes it roughly 300 times rarer than diabetes.
Life-long treatment with replacement steroid hormones is required. Medication is usually taken several times daily at carefully timed intervals and individuals must also know how to administer an emergency hydrocortisone injection to prevent a potentially fatal adrenal crisis.
The ADSHG is here to support the Addison’s community and their healthcare providers to promote better medical understanding of this rare condition, campaign for and support everyone affected by adrenal failure, and fund vital research.
Founded in 1984 by Deana Kenward shortly after her own diagnosis, the ADSHG now works in co-operation with some of the UK’s leading adrenal specialists to promote broader medical understanding and effective management of this rare condition.
Opening times
24 hour support available online. See our online forum: https://www.addisonsdisease.org.uk/online-forum, or our support page: https://www.addisonsdisease.org.uk/addisons-sos-sanctuary-of-support
Target group
General Public
Further information
We work to provide practical support to people affected by Addison's disease and adrenal insufficiency in a number of ways: · Advice and information for people living with the condition, and those who support them; · Local meetings and events around the UK and ROI; · Emergency medical advice for adrenal crisis; · Funding and supporting medical research; · Information for healthcare professionals; · Lobbying the NHS, HSE, policy-makers and influencers to consider the needs of people with Addison's disease and adrenal insufficiency. We are a Charitable Incorporated Organisation (non-profit) registered with the Charity Commission. We are governed by a team of volunteer trustees and run day-to-day by a small team and valued volunteers. Charity Number 1179825.
This information was supplied by Serco Global Services on 1 April 2025.