Carer centres and services Barth Syndrome UK
Contact us
About
Barth Syndrome UK is an active group operating primarily in the UK. We help families and carers obtain a fast and accurate diagnosis, provide support to diagnosed families and carers, access to specialised clinics and family social days as well as funding research into the disease. We work alongside the NHS Barth Syndrome Service in Bristol.
Opening times
Monday - Friday 9am - 5pm
Catchment area
This is a national helpline
Target group
Open to all
Further information
Support and Information Social Drop in Days Email: michaela.damin@barthsyndrome.org.uk
This information was supplied by Serco Global Services on 1 April 2025.