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Carer centres and services Fragile X Society Essex

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About

The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome.

The Society's Aims are to:

- provide support and information to fragile X families from those who share and understand their concerns and needs

- educate and inform the public and professionals about fragile X in order to raise awareness and understanding of the syndrome and so improve the care of all people affected by fragile X

- encourage research into all aspects of fragile X and publicise the results

Opening times

9am - 5pm

Catchment area

This is a national helpline

Target group

Those who care for or have relatives affected by Fragile X Syndrome and professionals who work with them

Referral method

Self refer

This information was supplied by Serco Global Services on 1 April 2025.