Carer centres and services Joubert Syndrome In The Uk
Contact us
About
We are an organisation set up and run by parents and volunteers for families and carers of children with Joubert Syndrome.
We aim to support newly diagnosed families by providing a listening ear from other parents of children with Joubert Syndrome who will have some understanding of how they may feel at the time of diagnosis.
Catchment area
This is a national helpline
This information was supplied by Serco Global Services on 1 April 2025.