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Carer benefits and legal services Little Hearts Matter

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About

Little Hearts Matter offers support and information to families with children affected by heart conditions such as Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Atresia, Tricuspid Atresia or Double Inlet Ventricle.

Catchment area

Nation-wide

Target group

Families, medical professionals, teachers, carers and anyone affected by a single ventricle condition.

Further information

Telephone Support LineThe support line is available every day between the hours of 9am and 10.30pm. During office hours the support line will go through to the office where we can offer support and signposting. After 4.30pm the helpline is manned by parent support volunteers who can provide information from their own personal experiences.Regional Support EventsVolunteer network leaders across the UK organise regional events each year so that families affected by a single ventricle condition can meet other families and support each other.Website and Message BoardsThe website is packed with both medical and lifestyle information about single ventricle conditions. The free message board service is available to anyone who would like to seek support from other families who have been affected by one of these conditions.Antenatal Support ServiceThey can offer both telephone and email support to anyone who has received an antenatal diagnosis of a single ventricle condition. They can also send out written information and an antenatal information DVD.Bereavement Support ServiceThey provide a bereavement support service to anyone who has been affected by the loss of a child with a single ventricle heart condition. Support can be provided by email and telephone from our bereavement team. They also hold bereavement events and have a bereavement book available free to members.

Referral method

Self-referral

This information was supplied by Serco Global Services on 1 April 2025.