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Disability information and support Telangiectasia Self Help Group

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About

The Telangiectasia Self Help Group provides information packs for sufferers of Hereditary Haemorrhagic Telangiectasia (Osler, Weber, Rendu Syndrome). If requested, and permission is given, members are put in touch with one another. An occasional Newsletter is produced whenever new research or treatment details become available and patient Conferences are held.

Opening times

Monday - Friday 9am - 5pm

Catchment area

Nation-wide

Target group

Anyone affected by Telangiectasia

Referral method

Self-referral

This information was supplied by Serco Global Services on 1 April 2025.